Fibromyalgia Sucks
It is believed that Fibromyalgia has to do with over active nerves.
New York Fibromyalgia Association
Feel free to contact us by email at: nyfsg@yahoo.com
New York Fibromyalgia Association:
Kris Corleone, Founder
John Tortorella, Co-partner
Victoria Tortorella, Co-partner
Support Group Info:
When: 2nd Tuesday of each month
Time: 7-9pm
Location: 2900 West 8th Street, Luna Park Community Center - Library, 1st Floor, Brooklyn, New York 11224
**Email us to RSVP
Directions:
Train - Q, N or D (West 8th train station stop)
What is Fibromyalgia?
Fibromyalgia (pronounced fy-bro-my-AL-ja) is a common and complex chronic pain disorder that affects people physically, mentally and socially. Fibromyalgia is a syndrome rather than a disease. Unlike a disease, which is a medical condition with a specific cause or causes and recognizable signs and symptoms, a syndrome is a collection of signs, symptoms, and medical problems that tend to occur together but are not related to a specific, identifiable cause.
Fibromyalgia, which has also been referred to as fibromyalgia syndrome, fibromyositis and fibrositis, is characterized by chronic widespread pain, multiple tender points, abnormal pain processing, sleep disturbances, fatigue and often psychological distress. For those with severe symptoms, fibromyalgia can be extremely debilitating and interfere with basic daily activities.
Whether you have been diagnosed with fibromyalgia or suffer from its symptoms, or have a family member or friend with the disorder, this section is designed to provide you with a better understanding of this chronic pain disorder that affects millions of people worldwide.
Source: http://www.fmaware.org/site/PageServer?pagename=fibromyalgia
New York Fibromyalgia Association:
Kris Corleone, Founder
John Tortorella, Co-partner
Victoria Tortorella, Co-partner
Support Group Info:
When: 2nd Tuesday of each month
Time: 7-9pm
Location: 2900 West 8th Street, Luna Park Community Center - Library, 1st Floor, Brooklyn, New York 11224
**Email us to RSVP
Directions:
Train - Q, N or D (West 8th train station stop)
Driving - We are located between Surf Avenue and Neptune Ave. Almost across from the 60 Precinct.
What is Fibromyalgia?
Fibromyalgia (pronounced fy-bro-my-AL-ja) is a common and complex chronic pain disorder that affects people physically, mentally and socially. Fibromyalgia is a syndrome rather than a disease. Unlike a disease, which is a medical condition with a specific cause or causes and recognizable signs and symptoms, a syndrome is a collection of signs, symptoms, and medical problems that tend to occur together but are not related to a specific, identifiable cause.
Fibromyalgia, which has also been referred to as fibromyalgia syndrome, fibromyositis and fibrositis, is characterized by chronic widespread pain, multiple tender points, abnormal pain processing, sleep disturbances, fatigue and often psychological distress. For those with severe symptoms, fibromyalgia can be extremely debilitating and interfere with basic daily activities.
Whether you have been diagnosed with fibromyalgia or suffer from its symptoms, or have a family member or friend with the disorder, this section is designed to provide you with a better understanding of this chronic pain disorder that affects millions of people worldwide.
Source: http://www.fmaware.org/site/PageServer?pagename=fibromyalgia
Monday, April 11, 2011
Thursday, March 24, 2011
Tuesday, March 15, 2011
Friday, February 25, 2011
FIBROMYALGIA AWARENESS DAY!!!! is MAY 12, 2011
Start Time | Today at 3:00pm - thru May 12 at 11:30pm |
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Location | New York Fibromyalgia Association, Brooklyn NY |
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Created By | |
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More Info | FIBROMYALGIA AWARENESS DAY!!!! is MAY 12, 2011 New York Fibromyalgia Association, Inc. is calling it "500 for Fibro" We need 500 members signed up by May 12th - by doing this, TD Bank will make a donation of 10% to our cause when anyone who already has an account or anyone opens a new account requests to be added onto the "AFFINTIY PLAN" under "New York Fibromyalgia Association, Inc." This does not in any way affect YOUR account. It only helps the cause. Please join us by signing up online through facebook or by coming to our meetings if you or someone you know has this painful chronic syndrome called FIBROMYALGIA. You do NOT have to be local in order to help out. You do NOT have to be on facebook to sign up either. To Avoid Facebook (as I know some people will want) & (knowing TD Bank is only on the East Coast), you can sign up by emailing a reply (not "reply all" please) to me with the phrase "PLEASE SIGN ME UP" (be sure to sign your name as you would like it to appear on the www.NYFibroAssoc.com website. Thanks in advance for your help! Kris Corleone - Founder/President |
BUSINESSES: If you would like your business listed on our website, please contact me for additional information.
Kris Corleone
Website: www.NYFibroAssoc.com
Thursday, August 12, 2010
Tuesday, August 10, 2010
September 2010 IMPORTANT DATES
SEPTEMBER IS PAIN AWARENESS MONTH
9/14/2010 SUPPORT GROUP MEETING
Other Important Dates:
9/6/2010 Labor Day
9/9/2010 Rosh Hashanah
9/12/2010 Grandparents Day
9/18/2010 Yom Kippur
9/23/2010 Autumn Begins
ButYouDontLookSick.com
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Read about the Spoon Theory, you'll be amazed how much you can relate.
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Thursday, April 22, 2010
Brooklyn Woman Makes Fibromyalgia Visible
Brooklyn Woman Makes Fibromyalgia Visible
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Today at 10:38am
BROOKLYN, N.Y.—(15 April 2010)—After being diagnosed with fibromyalgia in 2003, Kris Corleone from Brooklyn looked for a local support group as a way to meet others with fibromyalgia. When she couldn’t find anything in the New York City area she started her own group, and this year plans to “Make Fibromyalgia Visible” as part of National Fibromyalgia Awareness Day. Corleone understands the limitations that come with having fibromyalgia, which can include chronic pain, fatigue, and even cognitive difficulties. That’s why with the help of two of her friends she has reached out to other people in her borough to form a support group called New York Fibromyalgia Support Group. The group plans to spread the word about fibromyalgia and reach out to others living with it in New York. She has created a Blog (http://fibrobites.blogspot.com/), Facebook group, and is working on a Web site. “People come to me asking about fibromyalgia,” said Corleone. “So there is definitely a need to build awareness.”
Share
Today at 10:38am
BROOKLYN, N.Y.—(15 April 2010)—After being diagnosed with fibromyalgia in 2003, Kris Corleone from Brooklyn looked for a local support group as a way to meet others with fibromyalgia. When she couldn’t find anything in the New York City area she started her own group, and this year plans to “Make Fibromyalgia Visible” as part of National Fibromyalgia Awareness Day. Corleone understands the limitations that come with having fibromyalgia, which can include chronic pain, fatigue, and even cognitive difficulties. That’s why with the help of two of her friends she has reached out to other people in her borough to form a support group called New York Fibromyalgia Support Group. The group plans to spread the word about fibromyalgia and reach out to others living with it in New York. She has created a Blog (http://fibrobites.blogspot.com/), Facebook group, and is working on a Web site. “People come to me asking about fibromyalgia,” said Corleone. “So there is definitely a need to build awareness.”
Sunday, April 11, 2010
Support Group Location
We have found a location to hold our Support Group. We find only one issue. There is a cost for the location. Although it is the "cheapest" location we have come to find over the months, it is a nice place in a good neighborhood of Brooklyn.
Please sign up on Facebook so we can have an idea of how many people will be attending. This will give us an idea of when we can hold the first meeting.
Any questions, feel free to comment here or email us at nyfsg@yahoo.com.
Thank you!
P.S. Group will be a Tuesday from 7-9pm once a month to start.
Please sign up on Facebook so we can have an idea of how many people will be attending. This will give us an idea of when we can hold the first meeting.
Any questions, feel free to comment here or email us at nyfsg@yahoo.com.
Thank you!
P.S. Group will be a Tuesday from 7-9pm once a month to start.
Saturday, April 10, 2010
Dear Family and Friends,
I again am accepting the challenge to raise funds to support the National Fibromyalgia Association by participating in the Third Inaugural Walk of FAME 5K/10K walk/run, located at the Block at Orange in Orange, CA. Please help support me in this important project by contributi...ng generously. ...
Whatever you can give will help - it all adds up! I greatly appreciate your support and will keep you posted on my progress in the "virtual walk".
Sincerely,
Kris Corleone
This year I have created a team that you can join to help me.
A little information: Fibromyalgia Awareness Day — May 2010
Each May, countless people around the world take part in Fibromyalgia Awareness Day activities. Officially observed on May 12, Awareness Day is designed to increase awareness and understanding of fibromyalgia – a chronic pain disorder that affects 3 – 5 percent of the world population.
This year’s campaign,“Make Fibromyalgia Visible,” is aimed at bringing hope to this often isolated and misunderstood patient population through improved public knowledge of this chronic pain disorder.
Walk of FAME is celebrating its third year as the National Fibromyalgia Association’s fundraising awareness walk. The 2010 flagship event is scheduled for Saturday, May 15 in Orange County, Calif. There will be a number of additional walks in communities across the country and around the world.
*Source: NFA website Click here to visit my personal page.
If the text above does not appear as a clickable link, you can visit the web address:
http://www.fmaware.org/site/TR/AwarenessDay/General?px=1926140&pg=personal&fr_id=1110&et=_OIIikxhp0kUBczRa-PKFA..&s_tafId=2220
Click here to view the team page for New York Fibromyalgia Association (NYFSG)
If the text above does not appear as a clickable link, you can visit the web address:
http://www.fmaware.org/site/TR/AwarenessDay/General?team_id=1970&pg=team&fr_id=1110&et=w4AY_r78ZIqnPAbRWaSOoA..&s_tafId=2220
See More National Fibromyalgia Association: www.fmaware.org
Please help support this GREAT cause. There are so many of us out there who suffer from this dibilitating syndrome and there is not enough awareness out there.
I again am accepting the challenge to raise funds to support the National Fibromyalgia Association by participating in the Third Inaugural Walk of FAME 5K/10K walk/run, located at the Block at Orange in Orange, CA. Please help support me in this important project by contributi...ng generously. ...
Whatever you can give will help - it all adds up! I greatly appreciate your support and will keep you posted on my progress in the "virtual walk".
Sincerely,
Kris Corleone
This year I have created a team that you can join to help me.
A little information: Fibromyalgia Awareness Day — May 2010
Each May, countless people around the world take part in Fibromyalgia Awareness Day activities. Officially observed on May 12, Awareness Day is designed to increase awareness and understanding of fibromyalgia – a chronic pain disorder that affects 3 – 5 percent of the world population.
This year’s campaign,“Make Fibromyalgia Visible,” is aimed at bringing hope to this often isolated and misunderstood patient population through improved public knowledge of this chronic pain disorder.
Walk of FAME is celebrating its third year as the National Fibromyalgia Association’s fundraising awareness walk. The 2010 flagship event is scheduled for Saturday, May 15 in Orange County, Calif. There will be a number of additional walks in communities across the country and around the world.
*Source: NFA website Click here to visit my personal page.
If the text above does not appear as a clickable link, you can visit the web address:
http://www.fmaware.org/site/TR/AwarenessDay/General?px=1926140&pg=personal&fr_id=1110&et=_OIIikxhp0kUBczRa-PKFA..&s_tafId=2220
Click here to view the team page for New York Fibromyalgia Association (NYFSG)
If the text above does not appear as a clickable link, you can visit the web address:
http://www.fmaware.org/site/TR/AwarenessDay/General?team_id=1970&pg=team&fr_id=1110&et=w4AY_r78ZIqnPAbRWaSOoA..&s_tafId=2220
See More National Fibromyalgia Association: www.fmaware.org
Please help support this GREAT cause. There are so many of us out there who suffer from this dibilitating syndrome and there is not enough awareness out there.
Wednesday, March 10, 2010
3/10/2010
Hello everyone! I started this blog to keep in touch. Please feel free to comment while we are in the process of getting our support group together. We have been looking for a location in the Brooklyn area but have been unsuccessful as of yet. If anyone has any ideas, please feel free to let us know.
Thank you for being patient.
Kris
Founder - NYFSG
Thank you for being patient.
Kris
Founder - NYFSG
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