Fibromyalgia Sucks: Brooklyn Woman Makes Fibromyalgia Visible

New York Fibromyalgia Association

Feel free to contact us by email at: nyfsg@yahoo.com

New York Fibromyalgia Association:

Kris Corleone, Founder
John Tortorella, Co-partner
Victoria Tortorella, Co-partner

Support Group Info:

When: 2nd Tuesday of each month

Time: 7-9pm

Location: 2900 West 8th Street, Luna Park Community Center - Library, 1st Floor, Brooklyn, New York 11224

**Email us to RSVP

Directions:

Train - Q, N or D (West 8th train station stop)

Driving - We are located between Surf Avenue and Neptune Ave. Almost across from the 60 Precinct.

What is Fibromyalgia?

Fibromyalgia (pronounced fy-bro-my-AL-ja) is a common and complex chronic pain disorder that affects people physically, mentally and socially. Fibromyalgia is a syndrome rather than a disease. Unlike a disease, which is a medical condition with a specific cause or causes and recognizable signs and symptoms, a syndrome is a collection of signs, symptoms, and medical problems that tend to occur together but are not related to a specific, identifiable cause.

Fibromyalgia, which has also been referred to as fibromyalgia syndrome, fibromyositis and fibrositis, is characterized by chronic widespread pain, multiple tender points, abnormal pain processing, sleep disturbances, fatigue and often psychological distress. For those with severe symptoms, fibromyalgia can be extremely debilitating and interfere with basic daily activities.

Whether you have been diagnosed with fibromyalgia or suffer from its symptoms, or have a family member or friend with the disorder, this section is designed to provide you with a better understanding of this chronic pain disorder that affects millions of people worldwide.

Source: http://www.fmaware.org/site/PageServer?pagename=fibromyalgia

Thursday, April 22, 2010

Brooklyn Woman Makes Fibromyalgia Visible

Brooklyn Woman Makes Fibromyalgia Visible

Today at 10:38am
BROOKLYN, N.Y.—(15 April 2010)—After being diagnosed with fibromyalgia in 2003, Kris Corleone from Brooklyn looked for a local support group as a way to meet others with fibromyalgia. When she couldn’t find anything in the New York City area she started her own group, and this year plans to “Make Fibromyalgia Visible” as part of National Fibromyalgia Awareness Day. Corleone understands the limitations that come with having fibromyalgia, which can include chronic pain, fatigue, and even cognitive difficulties. That’s why with the help of two of her friends she has reached out to other people in her borough to form a support group called New York Fibromyalgia Support Group. The group plans to spread the word about fibromyalgia and reach out to others living with it in New York. She has created a Blog (http://fibrobites.blogspot.com/), Facebook group, and is working on a Web site. “People come to me asking about fibromyalgia,” said Corleone. “So there is definitely a need to build awareness.”

1 comment:

Fibromyalgia sucks said...: You can see the original article at the link below:

http://www.fmaware.org/site/News2?news_iv_ctrl=-1&page=NewsArticle&id=9605; August 12, 2010 at 9:08 PM